Tag Archives: ME-CFS

GOOD TIMES – BAD TIMES – Strangely NORMAL TIMES

Wrists in strong supports, left hand clasped tightly in armpit by right upper arm, right hand grasping left shoulder, upper left arm clasped tightly to side, and I want to scream. The nagging aching pain and discomfort little eased by … Continue reading

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Patient’s Progress?

This post is a sequel to – #ME – There and Back Again  _____________________________________________ Emotional resilience remains with me, apart from minor daytime lapses and nocturnal responses to my own unique brand of peripheral neuropathy. These nocturnal skin flaying, burning, … Continue reading

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#ME – There and Back Again

Sometimes it seems that even that moderately low plateau of stamina, is a level too high to return to. At present, a dispiriting pain and ache level of exhaustion seems intent upon taking permanent residence in my limbs and torso; … Continue reading

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Dis-Arming Dis-Ease

This posting is also on “The Word of Sinna Luvva” ********************************* Being tickled so hard that hysterical laughter turns into a painful scream, I wonder if you know that feeling, because that’s how I feel now except without the laughter! … Continue reading

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just so zambalouked – a tale of payback

absolutely zambalouked – that’s it – zambalouked; there’s no other word for it, it’s indescribable without its forbears, and the whole interminable history of signs and symbols encountered en route. First we had that dance routine, it starts with the … Continue reading

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living moderately

Well hello again! I’m not sure whether its weeks or months since I last proffered a “proper” blog post and, I must admit that the prospect seems rather daunting. No excuses, there’ve been good times and bad times, rough days … Continue reading

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A Traveller’s Tale

  As the names Sheffield & Leeds appeared on the motorway signs I felt able to breathe freely once more. There really is no other place on earth quite like God’s own county and, having just travelled up from deepest … Continue reading

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ME – my body – woes and gratitude

It’s becoming increasingly difficult not to sound like a moaning wimp. It isn’t that I feel much worse than has become my familiar norm and, I’ve frequently experienced more excruciating aches and pains than at present, but it’s an overall … Continue reading

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Stormy Weather

My most recent flood of tears almost put the current downpour of rain and hail to shame. A prolonged wearily exhausted phase of being has not always been easy to cope with; even an almost constant bruising constricted sensation across … Continue reading

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(doing the) anniversary wash

Today was one of those anniversaries, a day when I determined to take a shower (whether I needed it or not), only to be harshly reminded of the reason that showers have become a less frequent event in the life … Continue reading

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