Category Archives: myalgic encephalomyelitis

When Purgatory Beckons

I’ve always heard about the road to hell being paved with good intentions and, have more recently discovered that another’s good intention can bring severe dis-ease to the one being benefited by their deed. The past few weeks have not … Continue reading

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A Fall becomes a Set Back and a Shaggy Dog Tale

  Yesterday’s events brought back a memory from 1962 when I was a student nurse in Exeter. I especially recalled a young man on the orthopaedic ward who had a talent for inappropriately releasing the cot sides from his bed. … Continue reading

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Falling Prey to my inner wimp

Although most days, of late, have tended to feature a time of sustained pain and discomfort, its manner of onset varies considerably. Sometimes an ache in the palm of the hand and fingers, or more frequently wrist, can be set … Continue reading

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Of Conversation And Being Wallopped

Another shattered day, or should that be another day of shattered tiredness; perhaps a tired shattered-ness will suffice. Drained, wrung-out, exhausted; none of these quite hit the mark, although I feel quite walloped out by all of them. Just working … Continue reading

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just ANOTHER Day – a REAL Pain

Why don’t they come and release the clamps … why don’t they come and RELEASE THE CLAMPS? Stupid thing is there aren’t any clamps and, even if there were, there’s no-one around to free me from them. I’m just slowly … Continue reading

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the guilt trip of an involuntary social inactivist…

 As a life-long socialist*, I first joined the Labour Party in 1960 and, involvement in various campaigning groups on the internationalist/ social justice/ socialist spectrum swiftly followed. Unfortunately, health problems have, for more years than I care to remember, prevented … Continue reading

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attempted exorcism by written word

  It’s almost as if the legions of gremlins are on the warpath again, some kind of vendetta against me. Sometimes I’ve found that expressing my hopes, aches, pains and fears in a quite open way, laying myself vulnerable, affects … Continue reading

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